Living with Relapsing Polychondritis
Photograph of the back and shoulders of a white woman with brown hair. She holds on to the top of her head as if she is in pain. White text overlays the image and reads: I live with Relapsing Polychondritis which causes chronic pain and inflammation of cartilage. It has caused my trachea and bronchi to collapse. Meds suppress my immune system to try to control the disease.

Living with Relapsing Polychondritis

By Amanda Jones

Does rare disease equal special treatment? Unfortunately it hits barriers of disbelief and having endometriosis undiagnosed for years and years you’d have thought I would be resilient. But I’m human, full of love and positivity, living with Relapsing Polychondritis makes me 3 in a million, rare, and still discounted by those unaware. It’s attitude and listening we need for our advocacy. Coordinated care with specialists and holistic treatment and understanding. Please.

I can be found on Instagram, Twitter, Facebook, under @missysmatters sharing poetry, memes like these and trying to make a difference.

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